This is a true love story with a dramatic and exciting twist. After several years of excitement and immense fun together we were married on the beach at Whale Beach in Sydney [see cover]. Our backgrounds and experience were very closely matched even down to teaching at universities and consulting with unions and employers so we went into business bringing French students to Australian universities and colleges. We loved it.
Things started to fly off the rails when we found Ashlyn had inherited Huntington's Disease - a degenerative neurological disorder that effects movement, emotions, personality, and judgement. There is no known medicinal cure.
We had to build our own program of Polites exercise, Tai Chi, diet, and especially art classes. We discovered that Ashlyn was actually very talented with oil paints and a brush. Her neurologist explained the work had apparently increased the neuroplasticity in her brain. That was the exciting twist as you will see.
Ashlyn had inherited Huntington's Disease - a degenerative neurological disorder that affects movement, emotions, personality, and judgment.
There is no known medicinal cure.
We had to build our own program of Polites exercise, Tai Chi, diet, and especially art classes. We discovered that Ashlyn was actually very talented with oil paints and a brush. Her neurologist explained the work had apparently increased the neuroplasticity in her brain. That was the exciting twist as you will see.
Everything You Need To Know
Professor Roger Barker (Professor of Clinical Neuroscience, University of Cambridge), recorded a talk for us on the current and future landscape of Huntington’s treatment.
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